This week is Congenital Heart Disease Awareness Week. Today we are sharing Kirsty’s story. Many thanks to her mum Janet for sharing this with us. ‘Kirsty was born in summer 2001. When I was 24 weeks pregnant, an ultrasound scan showed Kirsty had a congenital heart abnormality. We were told she had a Ventricular Septal Defect (a Read more about Congenital Heart Disease: Kirsty’s story[…]
Written by her parents Ruth and Adam We found out that Lucy had Down syndrome when we were 13-14 weeks pregnant. We were shocked and in emotional turmoil. Down syndrome hadn’t been in the ‘plan’. So when I got a call from an unknown nurse telling me our unborn child had an extra chromosome, our Read more about Lucy’s heart journey – a Christmas story[…]
Written by Rebecca Boke Neely At the Pride of Britain awards Becky Twigger and Jamie McCallum made powerful statements. “I still have that guilt of feeling sad, and I don’t want any other parent to feel that way.” “Everyone needs someone with Down syndrome in their life.” Having had someone with Down syndrome in my Read more about We are still only beginning to realise what a gift people with Down syndrome are to the world[…]
Maria Mackeigan writes our blog this week about her daughter, Jordan Grace. Find her at @321_blessed_mom Our diagnosis story isn’t the most positive one. I wish it was. The doctor pushed us to abort twice after telling us that our baby would never be able to dress or feed herself. He said she would be Read more about Jordan Grace[…]
by Hayley Newman at Downs Side Up Hayley Newman tells us why she and her daughter Mia self-published their book I Love You Natty and how the close relationship between the girls inspired this firm favourite with parents and children everywhere. See more from Hayley @downssideup on social media or on her blog Downs Side Read more about Special Sisters’ Bond Inspires ‘I Love You Natty’ Book[…]
Written by Jennifer Lynn Hey, It’s October 1st, 2020. It’s starting to feel like Autumn. It’s a Thursday and you are stuck in the house again because of Covid. It’s also ROCKtober, but you don’t really know what that means yet. Today is when your journey begins. The day you will remember for the rest Read more about Letter to myself – 1 year ago[…]
Liz Arriens Me: “I think Coraline’s bored.” My mum: “I don’t think she’s bored; I think you’re bored.” Me: “I feel like maybe she needs different books with musical buttons.” Mum: “I think she likes the buttons in the books she has. You know the main thing she likes is to be with you.” This Read more about Ways we have grown this month: There’s no rush[…]
Wouldn’t Change A Thing are proud to support the campaign by the National Down Syndrome Policy Group to introduce The Down Syndrome Bill. Together, we have the opportunity to effect real change for our community! Take a read about what they are trying to achieve and how you can help below. The Down Syndrome Bill Read more about The Down Syndrome Bill – a chance for positive change[…]
In honour of Jamie and Rebecca receiving a Pride of Britain award, we asked some of our WCAT family their memories of the 50 Mums video and what it meant to them. This is my Daughter Elodie, who has Down syndrome, 16p Duplication, Autism, ADHD and a Visual Impairment. She is non verbal and doesn’t Read more about Memories of 50 Mums[…]
Welcome to ‘A Day In The Life!
What is it like having someone in your life with Down syndrome? What is it like having Down syndrome?