Lisa Carr I don’t think I’m alone as a mum with a child who is unique when I say that some of my most challenging thoughts and questions are how will he form meaningful friendships that will arm him like they have done me in life? Not token friendships but real real friendships. We work, Read more about Luke: Exploring the world with open eyes[…]

Nicola Houghton On Saturday 2nd April 2022, I had to keep a massive secret. Jessica had been nominated to receive a very exciting award and appear on prime time Saturday night telly. Oh, and she met Ant and Dec too! Jessica is a very exceptional young lady. Despite having significant health issues from the day Read more about Jessica meets Ant and Dec[…]

At the expo for her fourth Austin Half Marathon in February 2020, Kayleigh wanted to register for a full marathon the next year to honor her grandmother. At that time, she had completed 7 half marathons and wanted to do the full. I am not going to lie, the thought scared me. 26.2 miles is Read more about Kayleigh’s Journey to a Marathon[…]

Today we publish the final of our WDSD 2022 series of blogs written by our members about what inclusion means to them. Hazel Toal writes about her experiences with her daughter, Emily. Thank you so much to everyone who has shared their experiences this month. I must confess from the outset that my idea of Read more about Inclusion for my girl[…]

Today we continue our WDSD 2022 series of blogs written by our members about what inclusion means to them. Julie Fisher writes about her experiences with her son, Darcy. You can watch Julie’s recent Ted talk about Inclusion here Inclusion is a very broad topic, and many have different ideas of what it means to Read more about Inclusion: Give people a chance and watch them shine[…]

March 21st marks World Down Syndrome Day, the theme for 2022 is ‘Inclusion Means’. Today, we ask some of our members what inclusion means to them. ‘Since having River my thoughts on inclusion have changed a lot, in fact if I’m honest I don’t think I ever thought about it too much at all. Yes, Read more about What does inclusion mean to us?[…]

March 21st marks World Down Syndrome Day, the theme for 2022 is ‘Inclusion Means’. Over the next couple of weeks we will publish a series of blogs written by our members about what inclusion means to them. Mum Lorraine Edwards tells us about her son Cameron’s participation in a local musical theatre group. Everyone has their Read more about Inclusion: Youth Music Theatre[…]

March 21st marks World Down Syndrome Day, the theme for 2022 is ‘Inclusion Means’. Over the next couple of weeks we will publish a series of blogs written by our members about what inclusion means to them. Today’s blog is written by Pippa’s mum, Samm Gee. When you have a child with a disability, inclusion Read more about The Difference Inclusion Can Make[…]

Written by An Howell. Sammy’s mum, advocate, supporter and loudest cheerleader Way back in 1974 when Sammy was born, I may not have known anything about Down syndrome or how it might affect our lives but what I did know was that the baby girl I held in my arms was my daughter and whatever Read more about Living Life and Loving it[…]

This week is Congenital Heart Disease Awareness Week. Today we are sharing Kirsty’s story. Many thanks to her mum Janet for sharing this with us. ‘Kirsty was born in summer 2001. When I was 24 weeks pregnant, an ultrasound scan showed Kirsty had a congenital heart abnormality. We were told she had a Ventricular Septal Defect (a Read more about Congenital Heart Disease: Kirsty’s story[…]