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February 3, 2021

Directory

For more information about Down syndrome we have provided links to relevant organisations, blogs and support groups.

Organisations

Down Syndrome Association

https://www.downs-syndrome.org.uk

https://m.facebook.com/DownsSyndromeAssociation/

Down Syndrome Wales

https://www.downs-syndrome.org.uk/wales/

Down Syndrome Scotland

https://www.dsscotland.org.uk

Down Syndrome Ireland

https://downsyndrome.ie

Down Syndrome International

https://www.ds-int.org

Down Syndrome Education International

https://www.dseinternational.org/en-gb/

Down Syndrome Research Foundation

https://www.dsrf-uk.org

Down Syndrome Development Trust

https://downsyndromedevelopment.org.uk/about-dsdt/our-aims/

Don’t Screen Us Out

https://dontscreenusout.org

PADS Positive about Down Syndrome 

https://positiveaboutdownsyndrome.co.uk

Other Organisations

NCT Down Syndrome Page

www.nct.org.uk › baby-toddler › m…My baby has Down’s syndrome: support and information for new parents | NCT

The Makaton Charity

https://www.makaton.org/

Mencap

https://www.mencap.org.uk/

Family Fund

https://www.familyfund.org.uk/

Singing Hands

https://singinghands.co.uk/

DS Active

https://www.dsactive.org.uk

Blogs

I Am River

iamriver.net

https://www.facebook.com/IamRiverDownSyndromeAwareness

Feeling upside down

https://www.facebook.com/FeelingUpsideDown

Downs Side Up

http://www.downssideup.com/

https://www.facebook.com/downssideup

Down Syndrome – Raising Awareness and Shifting Attitudes

http://www.forceofnature21.com/

https://www.facebook.com/Downs-Syndrome-Raising-Awareness-and-Shifting-Attitudes-111884258891638

Fresh as Daisy

https://www.facebook.com/freshasdaisy2017

Downright Joy

https://www.facebook.com/downrightjoy

http://downrightjoy.com/

Sienna meets world

https://www.facebook.com/Siennameetsworld

https://www.instagram.com/sienna_meets_world

Coraline and Us

https://www.coralineandus.com/

https://www.facebook.com/coralineandus

Hormones and Chromosomes

https://www.facebook.com/hormonesandchromosomes

Makaton with Lucinda

https://www.facebook.com/Makaton-with-Lucinda-2138611176458442/

Frankie says relax about T21

https://www.facebook.com/frankiesaysrelaxaboutt21/

T21 on our way with Jossie May

https://www.facebook.com/T21onourwaywithJossieMay

Support Groups

UK Wide (online)

Wouldn’t Change A Thing Parent Support Group

https://www.facebook.com/groups/801281006738525

Designer Genes Parent Support Groups (from birth year 2013 onwards)

https://www.facebook.com/groups/837355226423695/

DSUK PADS Great Expectations for pregnant mums expecting a LO with Down Syndrome 

https://www.facebook.com/groups/415274562687672/

DSUK PADS Positive about Down syndrome – New Parents

https://www.facebook.com/groups/2188980851370457

DSUK Positive about Down syndrome Preschool Parents

https://www.facebook.com/groups/1374749646042816/

Future Of Downs Pregnancy Support

https://www.facebook.com/groups/FoDPregnancySupport/

Greater London

Down’s South London

http://www.downssouthlondon.org

Bexley Down’s Syndrome Group

https://www.bexleydownssyndrome.co.uk/

Downright Excellent

https://downrightexcellent.org/

Get On Downs (Sutton & surrounding areas)

https://www.facebook.com/GetOnDowns

South East

Berkshire, Buckinghamshire, Hampshire, Kent, Isle of Wight, Surrey, Oxfordshire, East Sussex, West Sussex

Brighton & Hove Down Syndrome Support Group

https://www.facebook.com/groups/255306491174545/

Chichester Down Syndrome Support Group

https://chichesterdownsyndrome.org.uk/

Stepping Stones – Down Syndrome Support Group – Hants, Surrey & Berks

https://steppingstonesds.co.uk

Down Syndrome Oxford

https://www.dsoxford.org.uk

Seaford Down Syndrome & special needs support group

https://www.seaford-dssnsg.co.uk

21 Together – Kent

https://21together.org.uk

Portsmouth Down Syndrome Support Group

https://portsmouthdsa.org

21 & Co (South West London and Surrey)

http://www.21andco.org.uk/

Down Syndrome OK (South London, Surrey & Sussex)

https://downsyndromeok.org.uk/

East Berkshire Down’s Syndrome Support Group

http://ebdssg.org.uk/

Kent Wide Down Syndrome Support Group

http://www.kentwideds.org/

North Bucks Downs Syndrome Group

https://www.nbdsg.org.uk/

PSDS  (Surrey)

https://psds.info/

South Bucks Down’s Syndrome Group

https://www.sbdsg.org.uk/

Sparkles – Supporting Children with Down’s Syndrome (Buckinghamshire)

https://sparkles.org.uk/

The Rainbow Club (Isle Of Wight)

https://www.facebook.com/groups/82487080642/

Worthing Down Syndrome Group

https://www.facebook.com/groups/231524630369400/

South West

Somerset, Bristol, Gloucestershire, Swindon, Wiltshire, Dorset, Devon, Cornwall

Cotswold Downs Syndrome Group

https://cotswolddownssyndrome.org

Cornwall Down Syndrome Support Group

https://www.cdssg.org.uk

Bristol Down Syndrome Trust

https://www.bristoldownsyndrometrust.org.uk

Plymouth and area Down’s Syndrome Support Group

https://www.facebook.com/groups/412630642443459/

Swindon Down’s Syndrome Group

http://www.swindondownsgroup.org.uk/

Ups and Downs South West (Somerset)

http://www.upsanddowns.net/

East of England

Essex, Hertfordshire, Bedfordshire, Cambridgeshire, Peterborough, Norfolk and Suffolk

Bedfordshire Down’s Syndrome Support Group

https://www.bedsdownssyndrome.co.uk/

Boston Down’s Syndrome Family Group

https://www.facebook.com/groups/414544972259122/

Dance21 (Essex)

http://dance21.co.uk/

Down Syndrome Extra21 (Essex)

https://www.extra21.org.uk/

Down Syndrome Group Northamptonshire

http://www.downgroupnorthants.co.uk/

Down’s Syndrome Norfolk

http://downsyndrome-norfolk.org.uk/

Down Syndrome Extra21 (Essex)

https://www.extra21.org.uk/

Down Syndrome Group Northamptonshire

http://www.downgroupnorthants.co.uk/

Just the way you are (Milton Keynes)

https://www.facebook.com/Just-the-way-you-are-MK-229500827183789

Peterborough Area Down’s Syndrome Group

http://www.padsg.org/

Project 21 (East Anglia & Essex)

https://project21uk.com

Up On Downs (Hertfordshire)

http://upondowns.com/

Ups ‘n’ Downs (East Northamptonshire)

https://www.upsndowns.co.uk/

Upwards with Downs (Essex and Hertfordshire)

https://www.upwardswithdowns.co.uk/

West Midlands

Herefordshire, Worcestershire, Shropshire, Staffordshire, Warwickshire, West Midlands

The Ups of Downs – Leamington Spa

https://upsofdowns.co.uk

Proud (Walsall)

http://proudwalsall.org/

Shopshire Down’s Syndrome Group

http://www.sdssg.co.uk/

Solihull Down Syndrome Support Group

http://sdssg.org.uk/

Stoke & Staffordshire Downs Syndrome Social Group

https://www.facebook.com/Stoke-and-Staffordshire-Downs-Syndrome-Social-Group-306138596638319/

Ups and Downs (West Midlands)

https://upanddownswm.weebly.com/

East Midlands

Derbyshire, Nottinghamshire, Leicestershire (including Rutland), Lincolnshire and Northamptonshire

N.E. Lincs Down Syndrome family support group

https://www.nelincs-downs-syndrome.co.uk

Down’s Syndrome Derby

https://www.dsderby.org/

Leicestershire Down’s Syndrome Group

https://www.leicesterdownsgroup.co.uk/

Lincolnshire Down’s Syndrome Support Group

http://www.lincsdownsyndrome.org.uk/

Nottinghamshire Down’s Syndrome Support Group

https://www.facebook.com/groups/162922984427836

North East

Northumberland, Tyne and Wear, County Durham

Down Syndrome North East

http://www.dsne.org.uk

North West

Cheshire, Greater Manchester, Lancashire, Merseyside, Cumbria, Isle of Man.

Bolton Smiley Faces

http://boltonsmileyfaces.org.uk/

Downs Syndrome Liverpool

https://downsyndromeliverpool.org.uk

South Manchester

https://www.dsmanchester.org.uk

Cheshire Down Syndrome Support Group

https://www.cheshiredownssyndrome.com/

Cumbria Down’s Syndrome Support Group

https://www.cdssg.net/

DS West Pennine Down’s Syndrome Family Support Group

https://sites.google.com/site/dswestpennine/

East Lancashire Down’s Syndrome Support Group

https://www.eastlancsds.com/

Ready Steady Down’s (St Helens)

https://www.facebook.com/groups/readysteadydowns

West Coast Down’s Syndrome Support Group

https://www.facebook.com/WCDSSG/

Yorkshire and the humber

South Yorkshire, West Yorkshire, North Yorkshire, East Riding of Yorkshire, Lincolnshire

Downright Special – Hull

https://www.downrightspecial.co.uk

Sunshine & Smiles – Leeds Down Syndrome Network

https://sunshineandsmiles.org.uk

Down Syndrome Training and Support Service Ltd (Bradford)

http://www.downsupportbradford.btck.co.uk/

Down’s Syndrome North Yorkshire

https://www.facebook.com/groups/420414071824953/

Downright Special Network ((Hull & East Riding of Yorkshire)

https://www.downrightspecial.co.uk/

Huddersfield Down Syndrome Support Group

https://www.hdssg.org/

North East Lincolnshire Down’s Syndrome Family Support Group

https://www.nelincs-downs-syndrome.co.uk/

RODS – Rotherham Organisation for Down’s Syndrome

https://www.rods-rotherham.org/

Sheffield Down Syndrome Support Group

https://www.sheffielddownsyndrome.co.uk/

Wakefield & District Down’s Syndrome Support Group

http://downsyndrome-wakefield.net/

York Down Syndrome Support Group

https://www.ydssg.org/

Wales

21 Plus (Monmouthshire and Forest of Dean)

https://21plus.org.uk/

South East Wales Down’s Syndrome Group

http://www.sewdssg.org.uk/

Central Wales Down’s Syndrome Support Group

http://oakwellbarns.co.uk/downs-syndrome/central-wales-downs-syndrome-support-group/

Scotland

There are 9 local branches of Down Syndrome Scotland, located throughout Scotland.

https://www.dsscotland.org.uk/your-local-branch/

https://www.facebook.com/dsscotland/

Ayrshirehttps://www.dsscotland.org.uk/your-local-branch/ayrshire/

Dumfries & Gallowayhttps://www.dsscotland.org.uk/your-local-branch/dumfries-galloway/

Centralhttps://www.dsscotland.org.uk/your-local-branch/central/

Angushttps://www.dsscotland.org.uk/your-local-branch/angus-branch/

Edinburgh & the Lothianshttps://www.dsscotland.org.uk/your-local-branch/edinburgh-and-the-lothians/

Aberdeen City & Shirehttps://www.dsscotland.org.uk/your-local-branch/aberdeen/

Highlands & Islandshttps://www.dsscotland.org.uk/your-local-branch/highland-and-islands/

Tayside & Fifehttps://www.dsscotland.org.uk/your-local-branch/tayside-and-fife/

West of Scotlandhttps://www.dsscotland.org.uk/your-local-branch/west-of-scotland/

Northern Ireland