Congenital Heart Disease: Kirsty’s story

This week is Congenital Heart Disease Awareness Week. Today we are sharing Kirsty’s story. Many thanks to her mum Janet for sharing this with us. ‘Kirsty was born in summer 2001. When I was 24 weeks pregnant, an ultrasound scan showed Kirsty had a congenital heart abnormality. We were told she had a Ventricular Septal Defect (a Read more about Congenital Heart Disease: Kirsty’s story[…]

We are still only beginning to realise what a gift people with Down syndrome are to the world

Written by Rebecca Boke Neely At the Pride of Britain awards Becky Twigger and Jamie McCallum made powerful statements. “I still have that guilt of feeling sad, and I don’t want any other parent to feel that way.” “Everyone needs someone with Down syndrome in their life.” Having had someone with Down syndrome in my Read more about We are still only beginning to realise what a gift people with Down syndrome are to the world[…]

Special Sisters’ Bond Inspires ‘I Love You Natty’ Book

by Hayley Newman at Downs Side Up Hayley Newman tells us why she and her daughter Mia self-published their book I Love You Natty and how the close relationship between the girls inspired this firm favourite with parents and children everywhere.  See more from Hayley @downssideup on social media or on her blog Downs Side Read more about Special Sisters’ Bond Inspires ‘I Love You Natty’ Book[…]